Where to follow research as it happens
- The Sick Times: independent news on Long COVID and ME/CFS, including detailed conference round-ups
- ME Research UK: research summaries and conference highlights
- Emerge Australia: Australian news, services and research
- ME/CFS Research Foundation conference videos: Berlin conference recordings
- ANZCTR: new Australian and New Zealand trials
- ClinicalTrials.gov: trials worldwide
- NIH RECOVER: US Long COVID trials
- Invest in ME Research: free conference videos
- Solve M.E.: free research webinars
Key sources used on this site
Conference and research summaries
- The Sick Times: International ME/CFS conference round-up, May 2026
- ME Research UK: Highlights from the International ME/CFS Conference 2026
- International ME/CFS Conference 2026: videos
Trial registries (checked 29 September 2026)
Every trial on our trials page links to its official registry entry: ANZCTR, ClinicalTrials.gov, ISRCTN or the EU Clinical Trials Register.
Studies referenced
- DecodeME genome-wide association study, 2025
- Edinburgh blood biomarker study, 2025 (EMBO Molecular Medicine)
- Neuroimaging meta-analysis, 2023 (65 studies)
- White matter neuroinflammation study, March 2026 (Human Brain Mapping)
- Griffith University glymphatic study, July 2026
- Brigham & Women’s Hospital autonomic study, January 2026
- Komaroff review, September 2026
- Stanford whole-body PET study (Michelle James), presented May 2026
- Cabanas et al. 2021 (Frontiers in Immunology); Eaton-Fitch et al. 2022 (Journal of Translational Medicine); Sasso et al. 2024 (Frontiers in Immunology); Sasso et al. 2025 (Frontiers in Molecular Biosciences): TRPM3 and naltrexone
- Canadian LDN trial for post-COVID fatigue (Nacul, UBC), NCT05430152, presented May 2026
- ADDRESS-LC bezisterim trial, NCT06847191, topline results 15 September 2026
- Simmaron low-dose rapamycin study, NCT06257420
- Castro-Marrero et al., CoQ10 + NADH in ME/CFS, 2015–2021
- Forsyth et al., NADH in CFS, 1999 (Annals of Allergy, Asthma & Immunology)
- Ostojic et al., creatine in post-COVID fatigue, 2023
- US Institute of Medicine, Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness, 2015
- NICE guideline NG206: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management, 2021
Spotted something out of date?
Research moves fast, and trial statuses change. Every page shows when it was last reviewed. For the latest status of any trial, always check its official registry link.