Where to follow research as it happens
- The Sick Times: independent news on Long COVID and ME/CFS, including detailed conference round-ups
- ME Research UK: research summaries and conference highlights
- Emerge Australia: Australian news, services and research
- ME/CFS Research Foundation conference videos: Berlin conference recordings
- ANZCTR: new Australian and New Zealand trials
- ClinicalTrials.gov: trials worldwide
- NIH RECOVER: US Long COVID trials
- Invest in ME Research: free conference videos
- Solve M.E.: free research webinars
Key sources used on this site
Conference and research summaries
- The Sick Times: International ME/CFS conference round-up, May 2026
- ME Research UK: Highlights from the International ME/CFS Conference 2026
- International ME/CFS Conference 2026: videos
Trial registries (checked 3 November 2026)
Every trial on our trials page links to its official registry entry: ANZCTR, ClinicalTrials.gov, ISRCTN or the EU Clinical Trials Register.
Studies referenced
Every research claim on this site now carries a numbered citation linking to the study, registry entry or official page it comes from. You’ll find the full list at the bottom of each page under References, with the evidence type labelled. The site cites more than 350 sources in total.
The most important include: the US Institute of Medicine report Beyond ME/CFS: Redefining an Illness (2015); the UK NICE guideline NG206 (2021); the DecodeME genetic study (2025 preprint); the Griffith University TRPM3 and glymphatic studies; the Canadian LDN trial (NCT05430152); the ADDRESS-LC bezisterim trial (NCT06847191); the Simmaron rapamycin study; the Charité care-model study (2026); the Castro-Marrero CoQ10 + NADH trials; the RESTORE ME oxaloacetate trial; and the Royal Children’s Hospital Melbourne long-term follow-up of young people.
Spotted something out of date?
Research moves fast, and trial statuses change. Every page shows when it was last reviewed. For the latest status of any trial, always check its official registry link.