Living with ME/CFS
Practical, evidence-informed guidance for day-to-day life. Start with pacing; everything else builds on it.
There’s no cure for ME/CFS yet. But there’s a lot you can do to stop it getting worse and to give your body the best chance of improving. The most important of these is pacing.
Pacing
How to stay inside your energy envelope, avoid the boom-bust cycle and the good-day trap, and why rest is treatment, not laziness.
Read →Dizziness on standing & POTS
Orthostatic intolerance and POTS are common in ME/CFS and among the most commonly missed treatable problems. Includes a home test you can do and how it's managed.
Read →Sleep
Why sleep is unrefreshing in ME/CFS, the overlap with sleep apnoea, and how to get a proper sleep study.
Read →Wearables & tracking
Which heart rate and HRV trackers help with pacing, what to look for, and a simple daily log you can start today.
Read →For family & carers
How friends, family and carers can genuinely help someone with ME/CFS, and the well-meant things that can make it worse.
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